Oxford Interstitial Lung Disease Service

We provide:

• diagnosis of ILD conditions
• access to diagnostic testing
• specialist therapies (Pirfenidone and Nintedanib) for some conditions
• specialist ILD Nurse support via helpline
• multidiciplinary approach to diagnosis and treatment when needed
• opportunities to take part in research trials
  
• referrals for lung transplants in suitable cases.
  

Our specialist ILD team has a wealth of experience in the assessment, diagnosis, management and treatment of Interstitial Lung Diseases.

We offer the highest level of specialist care for patients at all stages of ILD, from those newly diagnosed, to those in clinical trials all the way to those with more advanced disease requiring lung transplantation.

Our multidiciplinary team (MDT)

Some ILDs have underlying conditions, and this calls for a multidiciplinary approach. The ILD MDT has a weekly meeting to discuss both inpatients and outpatients. Such specialist discussions help with improved diagnosis and future treatment planning.

The MDT meeting is attended by:

• specialist clinicians
• a Radiologist
• a Pathologist
• a Rheumatologist
• a Physiotherapist
• a Nurse.

Our team

Medical team

• Dr Rachel Hoyles
  ILD Consultant (Clinical Lead)
• Dr Ling-Pei Ho
  ILD Consultant (Academic Lead)
  Special interest: sarcoidosis
• Dr Peter Saunders
  ILD Consultant
• Dr Emily Fraser
  ILD Consultant
• Prasanjanie Jayasinhe
  ILD Fellow

Multidiciplinary team

• Dr Rachel Bennamore
  ILD Radiologist
• Prof Fergus Gleeson
  ILD Radiologist
• Dr Heiko Psechl
  ILD Radiologist
• Dr Louise Wing
  ILD Radiologist
• Dr Mark McCole
  ILD Pathologist
• Dr Slaveya Yancheva
  ILD Pathologist
• Hannah Dewey
  Respiratory Medicine Physiotherapist

Nursing team

• Karen Parsons
  ILD Specialist Nurse
• Carmine Ruggiero
  ILD Specialist Nurse
• Fiona Lindsey
  ILD Specialist Nurse
• Nicola Bracey
  ILD Specialist Nurse
• Shakila Hussain
  ILD Clinical Support Worker

Secretarial and Administration team

• Linda Kelly
  ILD Medical Secretary
• Chloe Addison
  ILD Medical Secretary
• Ankita Acharya
  ILD MDT Co-ordinator
  

Contact us

Administration

Bernadette Barthelmy
Assistant Patient Pathway Administrator

Tel: 01865 225252

• Appointment queries
• Request copies of letters/reports
• Ask if results have been reported
• Update your contact details / GP details.

Clinical queries

Email: oxford.ild@ouh.nhs.uk

For clinical queries related to your lung disease - please state your query clearly and include your:

• full name
• NHS number or MRN
• date of birth.

We aim to respond within five working days.

For urgent issues call NHS 111, your GP or 999 if appropriate.

Links

Lung conditions

• Action for Pulmonary Fibrosis
• Lungs & You
• Pulmonary Fibrosis Trust
  
• Pulmonary Hypertension Association UK
  
• Sarcoidosis UK
  

Disability / carer support

• Age UK
  
• Asthma & Lung UK
  
• Attendance Allowance
  
• Apply for a Blue Badge - Oxfordshire
• Blue Badges (Disabled Parking) - West Berkshire
  
• Blue Badge for disabled parking - Buckinghamshire
• Carers Oxfordshire
• Support for Carers - West Berkshire
  
• Carer Support - Buckinghamshire
• Citizens Advice
  

Benefits

Personal Independence Payment (PIP)

People aged over 16 and under State Pension age with a long-term physical or mental health condition, who have difficulty doing certain everyday tasks, may be entitled to Personal Independence Payment.

Personal Independence Payment (PIP)

Attendance Allowance

People of State Pension age with long-term illness or disability may be entitled to Attendance Allowance.

• Attendance Allowance - Gov.UK
  
• Attendance Allowance - Carers UK
  
• How to claim Attendance Allowance - Citizens Advice

Pulmonary fibrosis and benefits

Action for Pulmonary Fibrosis has produced a short guide to social security benefits for people affected by pulmonary fibrosis:

Pulmonary fibrosis and benefits (pdf) - Action for Pulmonary Fibrosis

Travel insurance

You may need to go to a specialist provider for travel insurance.

• How I find travel insurance with my lung condition - Asthma + Lung UK
  
• Holidaying with pulmonary fibrosis - Action for Pulmonary Fibrosis
  

Mental wellbeing

TalkingSpace Plus

TalkingSpace Plus is a free, confidential NHS service for adults in Oxfordshire, to help people feeling stressed, anxious or low. You can self-refer online.

TalkingSpace Plus - Oxford Health

OUH Patient Portal

Patient Portal 'Health for Me'