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Patient support

External links

There are several support groups providing comprehensive information for patients and carers living with MND.

The Motor Neurone Disease Association UK (MNDA)
Excellent website, including sections on diagnosis, symptom management, local contacts and current research.
Video interviews with MND patients and their carers, detailing their experiences of all aspects of the condition.

The Amyotrophic Lateral Sclerosis Association (ALSA)
A US-based site that provides a similar range of information as the MNDA (see above).

The ALS Therapy Development Institute
A non-profit biotechnology company aiming to discover new treatments. This website concentrates more on current research.

Augmentative and alternative communication for MND: best practice for professionals
For advice about AAC, this is a good starting point from theMNDA.

Inherited motor neurone disease (MND) - Healthtalk
Find out about the experiences of families living with inherited forms of motor neurone disease (MND).

Patient guides

Patient guides on commonly raised issues

See also:

Books from our clinic

For patients and carers

Professor Kevin Talbot and Rachael Marsden have written a book called 'Motor Neuron Disease: The Facts' published by Oxford University Press. It contains comprehensive information about the disease for patients and carers.

Motor Neuron Disease: The Facts - Amazon

For healthcare professionals

The Oxford team have written 'Motor Neuron Disease - A Practical Manual' also published by Oxford University Press.

Motor Neuron Disease - A Practical Manual - Oxford University Press

Last reviewed:22 December 2022