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We will address research needs for the diagnosis, treatment, management and care delivery of people of all ages with rare inherited anaemias.
By Rare Inherited Anaemias, we mean:
This survey can be answered by anyone who
We have NOT included sickle cell disease and thalassaemia because, while in some parts of the country these are very rare, in others they are more common and there is much more research being done into these than the conditions listed above. We have also NOT included Fanconi’s anaemia or aplastic anaemia as these are bone marrow failure syndromes and we are focusing on conditions where anaemia is the predominant problem.
The survey is now closed.