The Steering Group

The Steering Group includes individual patient/carer representatives as well as representatives from advocacy groups, research funders and clinicians.

The role of the Steering Group is to develop and implement a Project Protocol that sets out the plans for the PSP. The Steering Group is committed to producing a prioritised list of unanswered questions about early osteoarthritis of hip and knee.

• Minutes of Steering Group held on 3 June 2015
• Minutes of the First Steering Group meeting held on 15 January 2015

Patient/ carer representatives

Sue Banton

Patient Representative

I am the founder and retired director of the parent and patient support group STEPS, a charity for people with lower limb conditions. I became involved with research projects for children and young people though STEPS.

Just before I retired from STEPS I was diagnosed with early osteoarthritis of the hip. I will use my own experience and my association with STEPS to contribute to this project.

Becky Harmston

Patient Representative

I had pain and stiffness in my right knee which eventually became unstable and painful when walking. An MRI scan, at the age of 36, showed cartilage and bone changes. In 2011 I had a knee arthroscopy and micro-fracture surgery to repair the damage and wear a leg brace to strengthen the knee. I'm interested in the PSP as I believe that there is not enough research or knowledge about the treatment of early stage osteoarthritis and that patients are not aware of the type of help available and where to access it.

Bob Green

Patient Representative

I have had both hips replaced, the right side in September 2013 and the left in Januray 2015. I also had a knee arthroscopy in October 2009. I have always done a lot of sport and kept very fit until the hips went. Since the operations I have made a full recovery. My father had osteoarthritis and underwent a double hip replacement at age of 68 and lived an active life until he died aged 84. My wife had DDH at birth with many operations as a child and had a full hip replacement 5 years ago, aged 50. My wife (a medical secretary) worked in the NHS for many years and now works for the University on various research projects as a medical secretary/administrator. I have taken part in several clinical trials and am very keen to be part of this particular project team.

Fraser Old

NOC Network Steering Group

As a retired research engineer, I first became interested in orthopaedic research as a carer for my wife, who has a number of musical-skeletal complaints. I subsequently had a hip replacement during the period of the first PSP on hip and knee replacement, so now have experience both as carer and patient.

Clinical representatives

Tony Andrade

Consultant Hip Surgeon, Royal Berkshire Hospital, Reading

I am a consultant Orthopaedic hip and knee surgeon with a specialist interest in the investigation and treatment of young adult hip problems. I have a national and international reputation for the use of arthroscopic hip surgery (key-hole surgery) in treatment of pre-arthritic and early osteoarthritic hip conditions. I have been part of a multi-centre randomised controlled trial of surgical versus non-surgical treatment of femoroacetabular impingement. I have a keen interest in helping to identify the most important treatment uncertainties in the treatment of early Osteoarthritis of the hip and knee.

David Beard

Extended Scope Physiotherapist Practitioner, Abertawe Bro Morgannwg University Health Board, Swansea, and Professor of Musculoskeletal Science, University of Oxford

Initially qualified as a Chartered Physiotherapist, I maintain an active clinical role as a Specialist Practitioner (Complex Knee) for a West Wales NHS Trust. Being involved with the initial Priority Setting Partnership on Hip and Knee Replacement for Osteoarthritis confirmed for me how important it is that research priorities are agreed between the people living with a condition and the health and social care professionals working with them.

John Dickson

Primary Care Rheumatologist

I am passionate about osteoarthritis. GPs are poorly equipped to help these patients. I was co-founder of the Primary Care Rheumatology Society to educate GPs and improve patient care. I have co-authored books on osteoarthritis specifically aimed at primary care and was clinical advisor for the NICE OA guidelines in 2007-8.

Sion Glyn-Jones, Consultant Hip Surgeon

Nuffield Orthopaedic Centre, Oxford University Hospitals Trust, and Professor of Orthopaedic Surgery, University of Oxford

Will Jackson

Consultant Knee Surgeon, Nuffield Orthopaedic Centre, Oxford University Hospitals Trust

Jan Lawrence

Chartered Society of Physiotherapists

I am a Chartered Physiotherapist and Head of Physiotherapy for a Welsh Health Board. I have extensive clinical expertise as an advanced orthopaedic and sports physiotherapy specialist with a wide clinical networking base across Wales and UK both in the NHS and private practice I have had recent experience as a patient, undergoing a knee replacement and experienced the dilemma of choosing surgery over non-surgical intervention.

Julia Newton

Consultant in Rheumatology/Sport and Exercise Medicine,Oxford University Hospitals Trust

As a Consultant in Rheumatology/Sport and Exercise Medicine, my clinical and academic interests in are in sport, exercise and musculoskeletal medicine. My academic time is within the Arthritis Research UK Centre of Excellence in Sport, Exercise and Osteoarthritis. The priorities of our research activities are to understand who is at risk of early osteoarthritis and how to intervene to mitigate this risk. Only by working with patients, practitioners who look after these patients and other stakeholders can we identify the key questions and translate the findings to improve outcomes for patients.

Andrew Price

Consultant Knee Surgeon, Nuffield Orthopaedic Centre, Oxford University Hospitals Trust, and Professor of Orthopaedic Surgery, University of Oxford

In my clinical practice I regularly meet patients with Early Hip & Knee Osteoarthritis. My involvement in the OA Hip and Knee PSP has been driven by the patients I see in clinic and developing better treatments for them.

Jenny Watson

Surgical Care Practitioner, Sheffield Teaching Hospitals; representative of The Arthroplasty Care Practitioners Association

I am presently working as the Surgical Care Practitioner for the Lower Limb Arthroplasty Unit in Sheffield NHS Teaching Hospitals Foundation Trust. This means that I work with patients who are having hip and knee problems from when they are first referred by their GPs, through their admission to hospital for joint replacement surgery and then in follow-up clinics afterwards. One of my jobs when patients first attend is to discuss with them what the cause of their problem is and whether surgery is the best option for them or whether there are other ways alleviate their symptoms and allow them to continue with their normal activities.

Fiona Watt

Consultant Rheumatologist, Nuffield Orthopaedic Centre, and Senior Lecturer, University of Oxford

I am a consultant rheumatologist treating people with knee and hip osteoarthritis. I also work in osteoarthritis research as a member of the Arthritis Research UK Centre for Osteoarthritis Pathogenesis at the Kennedy Institute of Rheumatology, University of Oxford. My work includes clinical studies of people at high risk of developing osteoarthritis and clinical trials of treatments for osteoarthritis, focussing on early diagnosis and management. I believe that identifying future research areas into new tests and medical treatments for osteoarthritis via priority setting is essential to improving quality of care for people with the condition.

Elspeth Wise

General Practitioner

I have been a GP for 10 years, working both full and part time. I have also worked as an Arthritis Research Campaign Educational Fellow looking at musculoskeletal education for doctors in training for General Practice. I believe that education for GPs should be focused more on what is seen commonly in primary care, i.e. soft tissue problems, back pain and osteoarthritis rather than secondary care issues. I was a member of the NICE Osteoarthritis Guideline Development Group for their recent update and am currently a member of the Quality Standards Committee. I am also a member of Arthritis Research UK's Osteoarthritis and Crystal Diseases Clinical Studies Group as the GP representative.

Additional expertise

Mark Bovey

British Acupuncture Council

Osteoarthritis is one of the most frequent conditions encountered by acupunturists. I represent the British Acupuncture Council both as a practitioner and also as Research Manager, so osteoarthritis research priorities are doubly of interest to me.

Tracey Howe

Professor of Rehabilitation Sciences at Glasgow Caledonian University

I am Professor of Rehabilitation Sciences at Glasgow Caledonian Unversity, and Director for External Relations and Partnerships, Glasgow City of Science. I am also an editor for the Cochrane Musculoskeletal Review Group and a convenor for the Cochrane Health Care of Older People Field. I started my career as a physiotherapist in the National Health Service in England. I enjoy strategic visioning, creative problem-solvong, and creating vibrant, multi-disciplinary environments, through collaboration, partnerships, and relationships that empower other to succeed.

Support

The Partnership and the priority setting process is supported and guided by:

Sally Crowe

The James Lind Alliance, as Chair of the PSP

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Sandra Regan

Oxford BRC James Lind Alliance Project Manager