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Oxford University Hospitals NHS Foundation Trust

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The process

The direction of research is usually set by researchers or by the drug industry. We want to enable patients, carers, and the health and social care professionals who are involved with blood transfusion and blood donation to have their say, so that future research in this area is aligned with what matters to everyone whose lives are affected and those who help and treat the people whose lives are affected.

The James Lind Alliance (JLA) process brings patient, carer, and clinician groups together on an equal footing in a Priority Setting Partnership (PSP) to:

  • identify unanswered questions about a health problem which is important to them
  • work as partners to prioritise the questions
  • produce a 'top ten' list of jointly agreed priorities as research questions to be presented to researchers and funders.

Our Project Protocol document outlines the process and sets out the aims, objectives and commitments of the PSP for Blood Transfusion and Blood Donation. It sets out how the project meets the principles established by the JLA. Our JLA Adviser has played a central role in helping the Steering Group establish this protocol and works to ensure that accountability and transparency are maintained throughout the project. 

Stage 1 - Establishing the PSP

  • Steering Group established
  • Protocol agreed
  • Partners recruited
  • Project management and administration arrangements confirmed
  • Initial Steering Group meeting

Stage 2 - Survey

  • Initial survey open
  • Partner organisations disseminate survey to members
  • Survey advertised

Stage 3 - Data management

  • Data management protocol agreed
  • Survey closes and all questions are captured
  • Out of scope questions removed and collated
  • Duplicates combined
  • Questions grouped by theme and arranged in a research question format
  • Existing research checked
  • Results and process reviewed by Steering Group

Stage 4 - Interim prioritisation

  • Interim prioritisation survey designed and open
  • Prioritisation analysis conducted
  • Shortlist of unanswered questions produced for final prioritisation

Stage 5 - Final prioritisation

  • Workshop attended by partners and partner organisations
  • Top ten unanswered research questions agreed by consensus