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Oxford University Hospitals NHS Foundation Trust
Clinical Haematology

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Haemophilia and thrombosis patient support

Community services

Oxford Health NHS Foundation Trust

Oxford Health provides community and mental health services across Oxfordshire and neighbouring counties, in community bases, hospitals, clinics and homes.

TalkingSpace Plus

Talking therapy service for people in Oxfordshire suffering from mild to moderate symptoms of anxiety or depression

Oxfordshire Mind

Oxfordshire Mind is a mental health charity where those with a mental health problem can find advice and support

Oxfordshire Mind - www.oxfordshiremind.org.uk

Oxfordshire Mind Information Line

The Oxfordshire Mind Guide

Directory of mental health services in Oxfordshire.

The Oxfordshire Mind Guide - www.oxmindguide.org.uk

Emotional wellbeing

Haemophilia Society: It's good to talk - haemophilia.org.uk

Sexual health

Sexual Health Oxfordshire

Clinics across Oxfordshire offering basic sexual health screening (tests), treatment, contraception and advice.

Sexual Health Oxfordshire - www.sexualhealthoxfordshire.nhs.uk

National and local support groups

Haemophilia Society

UK-wide charity for everyone affected by a bleeding disorder.

Haemophilia Society - haemophilia.org.uk

World Federation of Hemophilia

Global leadership to improve and sustain care for people with inherited bleeding disorders.

World Federation of Hemophilia - www.wfh.org

Global Treatment Centre Directory

Directory of Haemophilia Treatment Centres (HTCs) and haemophilia organisations worldwide.

Global Treatment Centre Directory - www.wfh.org

European Haemophilia Network (EUHANET)

Haemophilia Centre Locator

Enter your location to find your nearest five European Haemophilia Centres.

European Haemophilia Network (EUHANET) Haemophilia Centre Locator - www.hclocator.org

United Kingdom Haemophilia Centres Doctors Organisation (UKHCDO)

Comprehensive information on haemophilia, bleeding disorders and the National Haemophilia Database (NHD).

UKHCDO - www.ukhcdo.org

Condition specific information

We diagnose, manage and treat various inherited and acquired bleeding disorders.

Condition specific information

Home therapy

Haemtrack

Haemtrack is a secure therapy recording system, connecting patients and clinicians through the Haemtrack phone apps and website.

Haemtrack enables patients to record all therapies as they occur, and allows clinicians to see up-to-date therapy information to help monitor, optimise and improve patient care.

National Haemophilia Database

The UKHCDO is required by the Department of Health to collect data on diagnosis, management and complications of bleeding disorders. This information is kept in the National Haemophilia Database in Manchester.

A guide has been produced that explains the National Haemophilia Database:

Your Questions Answered: A leaflet for patients and their relatives (pdf)

Dental care

If you have been diagnosed with a bleeding disorder we generally advise to see a dentist locally every six months as a preventative measure rather than an emergency. It is very important that you receive regular dental care.

Prevention of dental problems

Everybody is at risk of dental problems. However, the management of certain types of dental disease may cause bleeding. Therefore, preventing dental disease is very important. The most common diseases are periodontal disease (gum disease), dental decay and tooth wear.

Dental treatment

The majority of your treatment will not cause significant bleeding and may be carried out by a general dental practitioner (dentist) or within the public dental service.

It is important to understand that you may not need to attend the hospital for all of your dental treatment.

Guidance for Adult Dental Patients with Bleeding Disorders (pdf)

If you have any questions about your dental treatment contact the Haemophilia Specialist Nurses: 01865 225308 / 225316.

Social care

If you live outside Oxfordshire, please see your GP for support and referral to social services.

Information and advice

What help is available and how to take control of your own care.

Information and advice about adult social care - oxfordshire.gov.uk

Adopting a healthy lifestyle

Carers

Carers Oxfordshire

If you are looking after someone and need information and support.

Carers Oxfordshire - www.carersoxfordshire.org.uk

Travel advice

Vaccination advice

If you have been diagnosed with a bleeding disorder, all vaccinations should be administered subcutaneously - that is just under the skin rather than deep in the muscle. You can obtain all your vaccinations via your GP practice nurse - this includes the annual flu vaccination and all travel vaccinations.

Your doctor may recommend that you consider being vaccinated against hepatitis A and B, if you need plasma-derived factor products (made from donated human blood) regularly as part of your treatment. These vaccinations should also be given subcutaneously at your GP practice.

If you have any questions regarding vaccinations, contact the Haemophilia Specialist Nurses: 01865 225308 / 225316.

Further support

Benefits

If you have been diagnosed with a bleeding disorder, you may be entitled to financial help.

Interpreting and translation

Interpreting and translation services

Immigration queries and advice

UK Visas and Immigration - www.gov.uk

Patient guide

Our 'Patient guide' section should answer practical questions about attending hospital.

Women's Health

Our 'Women's Services' section offers information about gynaecology, maternity, fertility and sexual health.