Haemophilia and thrombosis patient support
Community services
Oxford Health NHS Foundation Trust
Oxford Health provides community and mental health services across Oxfordshire and neighbouring counties, in community bases, hospitals, clinics and homes.
TalkingSpace Plus
Talking therapy service for people in Oxfordshire suffering from mild to moderate symptoms of anxiety or depression
Oxfordshire Mind
Oxfordshire Mind is a mental health charity where those with a mental health problem can find advice and support
Oxfordshire Mind - www.oxfordshiremind.org.uk
Oxfordshire Mind Information Line
The Oxfordshire Mind Guide
Directory of mental health services in Oxfordshire.
The Oxfordshire Mind Guide - www.oxmindguide.org.uk
Emotional wellbeing
Haemophilia Society: It's good to talk - haemophilia.org.uk
Sexual health
Sexual Health Oxfordshire
Clinics across Oxfordshire offering basic sexual health screening (tests), treatment, contraception and advice.
Sexual Health Oxfordshire - www.sexualhealthoxfordshire.nhs.uk
National and local support groups
Haemophilia Society
UK-wide charity for everyone affected by a bleeding disorder.
Haemophilia Society - haemophilia.org.uk
World Federation of Hemophilia
Global leadership to improve and sustain care for people with inherited bleeding disorders.
World Federation of Hemophilia - www.wfh.org
Global Treatment Centre Directory
Directory of Haemophilia Treatment Centres (HTCs) and haemophilia organisations worldwide.
Global Treatment Centre Directory - www.wfh.org
European Haemophilia Network (EUHANET)
Haemophilia Centre Locator
Enter your location to find your nearest five European Haemophilia Centres.
European Haemophilia Network (EUHANET) Haemophilia Centre Locator - www.hclocator.org
United Kingdom Haemophilia Centres Doctors Organisation (UKHCDO)
Comprehensive information on haemophilia, bleeding disorders and the National Haemophilia Database (NHD).
UKHCDO - www.ukhcdo.org
Condition specific information
We diagnose, manage and treat various inherited and acquired bleeding disorders.
Condition specific information
Home therapy
Haemtrack
Haemtrack is a secure therapy recording system, connecting patients and clinicians through the Haemtrack phone apps and website.
Haemtrack enables patients to record all therapies as they occur, and allows clinicians to see up-to-date therapy information to help monitor, optimise and improve patient care.
National Haemophilia Database
The UKHCDO is required by the Department of Health to collect data on diagnosis, management and complications of bleeding disorders. This information is kept in the National Haemophilia Database in Manchester.
A guide has been produced that explains the National Haemophilia Database:
Your Questions Answered: A leaflet for patients and their relatives (pdf)
Dental care
If you have been diagnosed with a bleeding disorder we generally advise to see a dentist locally every six months as a preventative measure rather than an emergency. It is very important that you receive regular dental care.
Prevention of dental problems
Everybody is at risk of dental problems. However, the management of certain types of dental disease may cause bleeding. Therefore, preventing dental disease is very important. The most common diseases are periodontal disease (gum disease), dental decay and tooth wear.
Dental treatment
The majority of your treatment will not cause significant bleeding and may be carried out by a general dental practitioner (dentist) or within the public dental service.
It is important to understand that you may not need to attend the hospital for all of your dental treatment.
Guidance for Adult Dental Patients with Bleeding Disorders (pdf)
If you have any questions about your dental treatment contact the Haemophilia Specialist Nurses: 01865 225308 / 225316.
Social care
If you live outside Oxfordshire, please see your GP for support and referral to social services.
Information and advice
What help is available and how to take control of your own care.
Information and advice about adult social care - oxfordshire.gov.uk
Adopting a healthy lifestyle
Carers
Carers Oxfordshire
If you are looking after someone and need information and support.
Carers Oxfordshire - www.carersoxfordshire.org.uk
Travel advice
Vaccination advice
If you have been diagnosed with a bleeding disorder, all vaccinations should be administered subcutaneously - that is just under the skin rather than deep in the muscle. You can obtain all your vaccinations via your GP practice nurse - this includes the annual flu vaccination and all travel vaccinations.
Your doctor may recommend that you consider being vaccinated against hepatitis A and B, if you need plasma-derived factor products (made from donated human blood) regularly as part of your treatment. These vaccinations should also be given subcutaneously at your GP practice.
If you have any questions regarding vaccinations, contact the Haemophilia Specialist Nurses: 01865 225308 / 225316.
Further support
Benefits
If you have been diagnosed with a bleeding disorder, you may be entitled to financial help.
Interpreting and translation
Interpreting and translation services
Immigration queries and advice
UK Visas and Immigration - www.gov.uk
Patient guide
Our 'Patient guide' section should answer practical questions about attending hospital.
Women's Health