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  • We are looking for someone to analyse the data we receive, form it into researchable questions, and check them against systematic reviews and guidelines to ascertain those that have been adequately answered by research, and those that have not. You can find more information using the link below:
  • Press Release - Answering questions about rare inherited anaemia
  • November 2016: We have had a brilliant response so far to our Survey, with over 160 people contributing their questions. There is still time for you to complete the Survey and contribute your questions about Rare Inherited Anaemias. We’re particularly keen to hear from more people with CDA and DBA (but all questions are gratefully received!). If you are a specialist nurse or geneticist we would particularly like to hear from you!