Paediatric Haemostasis Unit patient information
Community services
Shared care hospital
We work closely with our shared care hospitals and their community teams. They may be able to support you with routine treatment and we will liaise with them where this is needed.
You may also need to attend them for urgent care and the link consultant will be aware of your child and you should have an open access arrangement in place. Contact details can be found below. However should you attend these hospitals please also contact us to let us know so we can liaise with them regarding your care.
Shared care centres
Home therapy
Haemtrack
Haemtrack is a secure therapy recording system, connecting patients and clinicians through the Haemtrack phone apps and website.
Haemtrack enables patients to record all therapies as they occur, and allows clinicians to see up-to-date therapy information to help monitor, optimise and improve patient care.
Medicines to take home (TTOs)
The PHU email address can be used to order repeat prescriptions for your child, before an arranged appointment, or to ask non-urgent questions.
Please allow three working days for repeat prescription requests.
Email: paediatric.haemophiliaclinic@ouh.nhs.uk
Dental care
If you have been diagnosed with a bleeding disorder we generally advise to see a dentist locally every six months as a preventative measure rather than an emergency. It is very important that you receive regular dental care.
Dental treatment
The majority of your treatment will not cause significant bleeding and may be carried out by a general dental practitioner (dentist) or within the public dental service. However, if extractions are needed you should contact us for advice, and you may require a referral to the East Oxford Dental Service.
If you have any questions about your dental treatment contact the Paediatric Haemostasis Nurses.
Vaccinations
If you have been diagnosed with a bleeding disorder, all vaccinations should be administered subcutaneously - that is just under the skin rather than deep in the muscle. You can obtain all your vaccinations via your GP practice nurse.
Advice regarding administration of subcutaneous injections is given to all GP practice nurses in Chapter 4 of the green book.
If you have any questions regarding vaccinations, contact the Paediatric Haemostasis Nurses.
Benefits
If you have been diagnosed with a bleeding disorder, you may be entitled to financial help.
Last reviewed:12 February 2024