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Children's Haematology and Oncology

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Paediatric Haemophilia Unit

Oxford Haemophilia and Thrombosis Centre (OHTC) is a large comprehensive centre providing care to patients with inherited and acquired bleeding and clotting disorders.

We also have an Adult Haemophilia Service, which is based at the Nuffield Orthopaedic Centre (NOC).

Our services

The Paediatric Haemophilia Unit provides a comprehensive clinical service for children with inherited bleeding disorders across Oxfordshire and the Thames Valley Network.

We are based in Oxford Children's Hospital and, with the specialist coagulation laboratory at our adult centre at the NOC, we offer extended clotting diagnostic testing and ongoing management for registered patients.

Our team

We have a multidisciplinary team specialising in coagulation, comprising consultants, nurses, physiotherapists and research staff.

Please also see 'Our team'

Clinics

Routine follow-up clinics

Tuesdays 12.30pm - 16.30pm

Thursdays 10.00am - 12.00pm

New patient clinics

Wednesdays 9.30am - 12.00pm

Transition

We use the Ready Steady Go and Hello programmes for transitioning care to adult services, in line with NICE guidance.

Our paediatric specialist nurse works with young people and parents from about the age of 14 to develop skills and understanding of their condition.

Research

Oxford Haemophilia and Thrombosis Centre is very active in clinical research, participating in many national and international studies.

If you have haemophilia, or other rare conditions, you are very likely to be asked to consider taking part in a study to help improve future treatment.

This could range from answering a few questions and/or a single blood test, through to trialling a new treatment over a number of years.

The choice to take part in research is entirely yours. If you prefer not to take part, your decision will be respected by your team and it will not affect the care you receive.

Find us and contact us

Paediatric Haemophilia Team
Monkey Room, Children's Outpatients
Level LG1 Children's Hospital
John Radcliffe Hospital
Headley Way
Headington
Oxford OX3 9DU

Urgent problems

Routine hours

Please call the Nursing Team: 01865 226562

If the phone line is engaged or you get the Voicemail facility:

  • for urgent advice (e.g. active bleed, head injury, treatment support on the day) please call Switchboard and ask to bleep the nursing team on 5926
  • if an immediate response is not required, please leave a message which will be responded to by the end of the working day or email us as below.

Emergency out of hours

Outside office hours, on weekends or public holidays.

Tel: 0300 304 7777 (Switchboard)

Ask to speak to the Specialist Haematology Registrar on call.

Non-urgent enquiries

Appointment changes, travel letters, school information

We would appreciate it if you could email to ensure that patients can get through to the Nursing Team when needed and we can prioritise patient care appropriately.

Email: paediatric.haemophiliaclinic@ouh.nhs.uk

These will be followed up with a phone call or replied to within three working days.

Referrals and other queries

Haemophilia Secretary: 01865 234212

Email: paediatric.haemophiliaclinic@ouh.nhs.uk

If you require a secure NHS.net email please contact the Secretary.

Last reviewed:06 February 2023