UK Data Protection Act 2018
In the UK, data privacy is controlled by the Data Protection Act 2018 and the UK General Data Protection Regulation (UK GDPR). These laws set strict rules for how businesses and public groups collect, use, and store personal information.
National Data Opt-Out
The National Data Opt-Out (NDOO) service lets people decide whether their confidential patient information can be used for research and planning.
National Data Opt-Out - NHS England Digital
How patients can change their status
Patients can visit the NHS website or use the NHS App to change their status - they will need their NHS number to make any changes.
Choose if data from your health records is shared for research and planning - NHS
Maintaining data awareness and governance
To comply with local and national standards we must ensure we are approaching patients who have opted in to participate in audit, service evaluation, quality improvement or research.
If your service evaluation or quality improvement project involves the collection of patient data, whether as part of your clinical role or your academic programme (for example Advanced Clinical Practice), contact OUH Information Governance and request a filtered list of patient data before you start your project.
Email: information.governance@ouh.nhs.uk
You should not use your own patient lists as these are not filtered. This applies to all staff.
Before starting a project that uses patient data
Please visit the OUH Data and Analytic Sharepoint site
Raise an Information Request via ServiceNow - return of information can take up to one month
Once you have the information returned to you, you can start your project
If you have further questions you can email information.governance@ouh.nhs.uk
Registering your project on Ulysses
Once you have approval to commence your project from departmental governance leads and university (if your project is part of an academic course) and have the patient list you need from information governance you will need to register your project on Ulysses.
