Research
Researchers in the Oxford Craniofacial Unit are trying to understand about language development in children with non-syndromic sagittal synostosis.
To do this we are comparing language development in children with non-syndromic sagittal synostosis with their full biological (e.g. same parents for both children) sibling of the same sex without sagittal synostosis.
Who is invited to participate in this study?
Parents of a child with non-syndromic sagittal synostosis who have a full biological sibling of the same sex without sagittal synostosis.
We are looking to give a questionnaire about children's language development, and a background information survey to the parents of 100 children (aged 5 years to 16 years 11 months old), and their full biological sibling (e.g. same parents for both children) of the same sex without sagittal synostosis (aged 5 years to 16 years 11 months old).
Your child with non-syndromic sagittal synostosis is receiving care at one of the five designated NHS craniofacial Units (Oxford, Alder Hey, GOSH, Birmingham, Glasgow).
If you are interested in finding out more about this study, please contact Sarah Kilcoyne from the Oxford Craniofacial Unit.
Tel: 01865 234041 / Email: sarah.kilcoyne@ouh.nhs.uk
News articles
News articles from the BBC
The children of Oxford Children's Hospital's Craniofacial Unit
February 2017
A new skull for Finley
May 2011
