This website uses cookies

We use essential cookies to make this website work. Additional cookies help us to make improvements (analytics) or are set when we incorporate functionality from other websites, such as video, social media feeds and ReachDeck (text-to-speech and translations). More on how we use cookies

Set preferences

Enable ReachDeck

This website uses text-to-speech software called ReachDeck to read and / or translate its content. To use ReachDeck, you must allow ReachDeck cookies; the ReachDeck icon will then appear at the bottom of your screen.

You can find out more about how ReachDeck uses cookies or change your cookie preferences at any time by going to our cookies page.

Oxford University Hospitals NHS Foundation Trust: home
Oxford Centre for Genomic Medicine
OUH Home Oxford Centre for Genomic Medicine For patients Information and support

Information and support

Leaflet

Von Hippel-Lindau Disease (pdf)

Support groups

  • Genetic Alliance UK
  • Headlines Craniofacial Support
  • Rare Disease UK
  • SWAN UK
  • Unique - Understanding Rare Chromosome and Gene Disorders

Specialist support

Antenatal

Antenatal Results and Choices (ARC) - non-directive information and support before, during and after antenatal screening

Cancer

Bowel Cancer and Lynch Sydrome

Bowel Cancer | Lynch Syndrome UK

Bowel Cancer and Family History

Family history | Risk factors | About bowel cancer | Bowel Cancer UK

Cancer Research

Can cancer be prevented? | How to reduce your risk of cancer

Maggies

Maggie's, Oxford | Maggie's

Cystic Fibrosis

Cystic Fibrosis Trust

Endocrine Neoplasia Disorders

Home - AMEND

Huntington's Disease

Huntington's Disease Association

Li Fraumeni Syndrome

George Pantziarka TP53 Trust - Li Fraumeni Syndrome - supporting families and individuals with this cancer predisposition syndrome

Mental health

Private Therapy - Rareminds

Prostate Cancer

Prostate Cancer UK

PTEN Hereditary Cancer Support

PTEN UK & Ireland ​Patient Group

In this section

  • For patients
  • Clinics
  • FAQs
  • Information and support
  • Patient feedback
  • Oxford Centre for Genomic Medicine
Last reviewed: 10 September 2024

Sharing and printing

Listen / translate this page

To use ReachDeck to listen to or translate this site you must

For more information please visit our cookies page

ReachDeck is enabled. If you wish to disable ReachDeck please visit our cookies page

Oxford Centre for Genomic Medicine is part of Oxford University Hospitals (OUH)

  • OUH main page
  • About us
  • Hospitals
  • Patient guide
  • Our services
  • Research
  • Our consultants
  • Referral information
  • News
  • Working for us
  • Contact us
  • Sign language interpreting service
  • Easy Read
  • Listen to / translate this website

Follow us

LinkedIn Facebook Instagram Threads X (formerly Twitter) Bluesky YouTube
Freedom of Information The NHS website - nhs.uk

About this website

  • Privacy Notice
  • Accessibility statement
  • Cookies
  • Sitemap
  • Terms of use
Copyright © 2025 Oxford University Hospitals NHS Foundation Trust
"Oxford University" is a registered trade mark of the University of Oxford, and is used with the University's permission.
  • Oxford Centre for Genomic Medicine
  • About us
  • For patients
    • Clinics
    • FAQs
    • Information and support
    • Patient feedback
  • For professionals
    • Test requests
    • GP information
    • Training
    • Work for us
  • Our team
    • Consultant profiles
    • University staff profiles
    • Specialist Registrar staff profiles
    • Genetic Counsellor profiles
  • Contact us