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Oxford University Hospitals NHS Foundation Trust

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Oxford Interstitial Lung Disease Service

Oxford University Hospitals is a tertiary referral centre for individuals with Interstitial Lung Disease (ILD) across Oxfordshire, Berkshire, Buckinghamshire and Northamptonshire. Our ILD service is one of a small number of specialist centres across England, which provide a specialist multidisciplinary service for diagnosis, treatment and ongoing care for individuals with ILD.

Interstitial Lung Disease

Interstitial lung disease (ILD) refers to more than 200 chronic lung disorders, which have thickening of the supportive tissues between the air sacs of the lungs (interstitium) as the common factor.

The interstitium is affected by inflammation, which can develop into scarring (fibrosis). Fibrosis causes lung tissue to become thicker and stiffer; lung volume is reduced, which is compounded by a reduced ability to transfer oxygen into the bloodstream.

Interstitial lung disease results from a variety of causes and may be idiopathic, with no identifiable cause.

Interstitial lung disease is usually diffusely spread across the lung rather than affecting a single area.

Two of the most common ILD disorders are Idiopathic Pulmonary Fibrosis and Sarcoidosis.

Multidisciplinary team (MDT)

  • Dr Rachel Hoyles, Consultant Respiratory Physician
    OUH Clinical Lead for ILD
  • Dr Ling-Pei Ho, Consultant Respiratory Physician
    Academic Lead (Special interest: Sarcoidosis)
  • Dr Rachel Benamore, ILD Radiologist
  • Dr Victoria StNoble, ILD Radiologist
  • Dr Mark McCole, ILD Pathologist
  • Dr Colin Clelland, ILD Pathologist
  • Sarah Poole, Lead Respiratory and ILD Specialist Pharmacist
  • Rachel Lardner, Respiratory Medicine Physiotherapy Team Lead
  • Ophelia English, ILD Nurse Specialist
  • Carmine Ruggiero, ILD Nurse Specialist
  • Benjamin Black, ILD MDT coordinator
  • Linda Brown, ILD medical secretary
  • Alexander Polley, ILD secretarial assistant

Hospital inpatient care

The progression of interstitial lung disease may include periods of acute deterioration in respiratory function.

OUH provides care for patients admitted with such acute exacerbations at the John Radcliffe, Churchill and Horton General hospitals.

The ILD multidisciplinary team (MDT) has a weekly meeting where patients (both inpatients and outpatients) are discussed. The MDT is attended by specialist clinicians, radiologist, pathologist, rheumatologist, physiotherapist, nurse and the MDT co-ordinator.

Outpatient care

There are dedicated weekly multidisciplinary outpatient clinics at the Churchill Hospital, attended by Dr Hoyles and Dr Ho, in combination with specialist registrars, pulmonary rehabilitation physiotherapist and specialist ILD nurse.

As many ILDs occur because of an existing autoimmune disease such as rheumatoid arthritis, joint ILD / rheumatology clinics are also held.

Individuals new to the ILD service may require additional investigations such as:

  • CT scan
  • lung function test
  • exercise tests
  • echocardiogram
  • bronchoscopy

in order to confirm their diagnosis, extent or progression of disease.

New patients also have the opportunity to see a specialist nurse, where education on the condition, its treatment along with symptom management is reviewed.

Patients also have access to a dedicated helpline and email address:

Community patient care

The Respiratory Care Team offers a range of support services to enable patients to be cared for at home where possible, rather than be admitted to hospital.

The team supports patients with a range of chronic respiratory conditions including ILD.

Pulmonary Rehabilitation

The Oxford Pulmonary Rehabilitation (PR) Service started in 1993 and has since expanded and moved out of its hospital setting. It is now run by Oxford Health with dedicated physiotherapists and a capacity for 500 patients per year.

PR programmes are run in a variety of community and healthcare settings at:

  • Abingdon
  • Banbury
  • Bicester
  • Chipping Norton
  • Didcot
  • Oxford (OXSRAD gym)
  • Wantage
  • Witney

Local gym instructors have received training in PR, so that a selection of follow-on classes is available in the community.

Pulmonary Rehabilitation Services are also available locally to individuals from outside of Oxfordshire who attend clinic.

Home Oxygen Service

The Home Oxygen Service (assessment for ambulatory and long term oxygen) provides all home oxygen prescribing in Oxfordshire, with the exception of emergency out-of-hours prescription by GPs.

Oxford Pulmonary Fibrosis Support Group

A patient and carer support group, supported by the British Lung Foundation and Action for Pulmonary Fibrosis, meets on alternate months at Sandford-on-Thames Village Hall.

The Oxford Pulmonary Fibrosis Support Group has been established to provide information, support and the opportunity for patients with pulmonary fibrosis to meet others with the same or similar chest diseases.

The meetings last for approximately one and a half hours. Tea, coffee and light refreshments are provided. There is a short talk from an external speaker followed by time to chat and share invaluable personal experiences.

There is also an associated newsletter where further information around topics of interest can be found, as well as other news from group members.

Copies can be found here:

Website

For further information contact the ILD Nurse Specialist:

World IPF Week

World IPF Week is a global event created to inform people about Idiopathic Pulmonary Fibrosis (IPF). The ILD team and patient group continue to support this week to raise awareness and 2015 was no exception.

IPF Week 2017 will take place on 16-24 September 2017.

If you are in interested in getting involved, or would like more information about last year's IPF week, then please visit the British Lung Foundation and Action for Pulmonary Fibrosis web pages.

Oxford ILD Service contacts

Appointment enquiries

All outpatient appointments at the Churchill, John Radcliffe and Horton General hospitals are handled through the Patient Contact Centre:

Links

DEPARTMENTS AND SERVICES