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Oxford University Hospitals NHS Foundation Trust
Oxford Genomic Medicine Centre

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Get involved! Opportunities for patient and public involvement

There are several other ways for participants, patients and members of the public to get involved in research in genomics.

For current participants of the 100,000 Genomes Project

By participating you are already contributing toward research to help patients now and in the future, but there are further opportunities for you to play a role in this pioneering project and help shape the way we work.

Join a Patient and Public Involvement Group

The 100,000 Genomes Project has established a National Participation Panel.

The panel works to ensure the interests of participants are always at the centre of the 100,000 Genomes Project. It meets three times a year in London (expenses for travel and time are paid). Information about how to join can be found on the Genomics England website, or we can tell you more if you contact us.

Our local Genetics Patient and Public Involvement Group welcomes new members. Participants in the 100,000 Genomes Project are encouraged to join as well as their family members and carers.

This group works to support and ensure patient representation in local research projects on medical genetics and genomics in Oxford and the surrounding area. It's involved in a variety of tasks including reviewing text for plain English summaries, web pages such as this, as well as helping identify what research matters to patients.

Email: Oxford.GeneticsPPI@ouh.nhs.uk

Share your story

We need participants to share their experience to inspire others and help us to raise the profile of the 100,000 Genomes Project locally and nationally. Your story could be used on our website, in newspaper and newsletter articles, or by broadcast media if you are happy to be interviewed.

Being interviewed by the media could range from providing a quote for a newspaper article to appearing on radio or television. This may seem daunting, but we'd support you every step of the way.

Become a Genomic Patient Champion

In order to help tackle health inequalities in some communities, we are keen to hear from people who are involved in community-based work or activities. Could you draw upon your experience of participation to offer support and advice about the 100,000 Genomes Project within community groups such as Black and Minority Ethnic (BME)?

Your time matters

Your time is very important to us, we know it is precious and we appreciate your input. Providing feedback on questionnaires or taking part in an interview may take one to two hours. Other activities may take up to half a day.

You can tell us how much time you would like to commit. When opportunities arise we will contact you to tell you what is involved so that you can decide if you would like to help without obligation.

However much or little time you can spare, your contribution will be valued. Get in touch for more information. We'd be delighted to hear from you.

Email: Oxford.GMC@nhs.net

For people who are not participants in the 100,000 Genomes Project

The National Institute for Health Research Oxford Biomedical Research Centre (NIHR OxBRC) offers many opportunities for patient and public involvement across the Thames Valley.

Patients Active in Research (PAIR)

Patients Active in Research is an organisation which promotes partnerships between patients, carers, other members of the public, and medical researchers. Its aim is to ensure that medical research focuses on what really matters to those affected by ill health and is carried out in ways that encourage them to take part.

Find out more about PAIR and current opportunities at their website:

Patients Active in Research - https://patientsactiveinresearch.org.uk