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The aim of the Rare Inherited Anaemias PSP is to identify current uncertainties in the diagnosis, treatment, management and care delivery of people of all ages with rare inherited anaemias, and the impact on their families, from patient and clinical perspectives, and then prioritise those that patients and clinicians agree are the most important.
By Rare Inherited Anaemias, we mean:
We want to hear from:
The extreme rarity of these conditions and the lack of equal access to either diagnosis or treatment for patients across the UK highlight the need to focus on what patients, carers and clinicians feel are the most pressing uncertainties regarding the care of these patients.
For more information, please have a look at the Glossary using the link below.
0300 304 7777
John Radcliffe Hospital
Nuffield Orthopaedic Centre
Horton General Hospital