The Steering Group
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The Bipolar PSP was managed by a Steering Group and was chaired by an independent advisor from the James Lind Alliance. The Steering Group included individual patient/carer representatives as well as representatives from advocacy groups, research funders and clinicians.
The role of the Steering Group was to develop and implement a Project Protocol that sets out the plans for the Bipolar PSP. The Steering Group was responsible for establishing a timeline and budget for the project and is committed to producing a prioritised list of unanswered questions about bipolar.
Patient and family or carer representatives
Edmund is a carer of a family member who has been diagnosed with a bipolar condition. He is an advisor to two university healthcare research projects funded by the NIHR. He peer-reviewed a research proposal on the study of Bipolar Disorders which was approved by NIHR, and is presently on the Evaluation Team for modernising mental health services commissioned by Bristol CCG as well as a lay member of a national clinical reference group for Acute Adult Care. He was elected as a Patient Governor to an acute hospital Trust in May 2014.
Service user representative and Recovery and Social Inclusion Worker, Leeds and York NHS Partnership Foundation Trust
Rachel is a family representative for the Priority Setting Partnership. Her father has lived with severe bipolar disorder since the late 1970s. She is also an editor for the Cochrane Collaboration, a not-for-profit organisation producing systematic reviews of healthcare interventions, and she has worked in medical publishing since 2003.
Chief Executive, Bipolar UK
Suzanne is the Chief Executive of Bipolar UK. Suzanne has more than 20 years' experience within the voluntary sector. In addition to her professional career, she is an active service volunteer and has served on a number of trustee boards.
Suzanne joined Bipolar UK in July 2010. She is passionate about raising standards of support and treatment for individuals affected by bipolar, while also raising awareness and understanding within society at large.
Chief Executive, SANE
Head of Section, Service User Research Enterprise (SURE)
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Psychiatrist, Leeds and York NHS Partnership Foundation Trust
Tom was appointed Consultant Psychiatrist in Leeds and Honorary Senior Clinical Lecturer in Psychiatry at the University of Leeds in 1998. He is involved in research in bipolar disorder and depression and is also Associate Medical Director for Research at Leeds and York NHS PFT.
Psychiatrist, Oxford Health NHS FT
Mary Jane is a Senior Clinical Research Fellow at Oxford University Department of Psychiatry, Clinical Lead for the NIHR Oxford cognitive health Clinical Research Facility and Honorary Consultant Psychiatrist with Oxford Health NHS Foundation Trust. She has a longstanding interest in bipolar mood and is a member of the Collaborative Oxford Network for Bipolar Research to Improve Outcomes (Conbrio) research group. She considers the PSP very relevant especially as there are clearly a number of unanswered questions in the management of bipolar. She is also interested in supporting well thought out methodologies that are part of PPI, the JL Alliance has a good track record in this area.
Chair British Association for Counselling & Psychotherapy
Royal College of Nursing Mental Health Adviser
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Research Fellow, University of Oxford
Jennifer is a Research Fellow at the University of Oxford Department of Psychiatry. She has experience of developing and managing international randomised clinical trials of medicines and of psychotherapies for bipolar disorder. She has conducted systematic reviews and Delphi studies and been a facilitator for a brief psychoeducational program to help people understand and manage their mood changes using electronic mood monitoring (using True Colours).
Cochrane Depression, Anxiety and Neurosis Group
Rachel is a Reader in Psychiatric Epidemiology at the University of Bristol. Since 2001, she has been the Coordinating Editor of the Cochrane Depression, Anxiety and Neurosis Review Group, the scope of which includes bipolar disorder. Over the last five years she has been working on different approaches to ensure that evidence about treatments reflects the needs of users. She has a long-standing interest in bipolar disorder and is also involved in a Depression PSP.
Oxford Biomedical Research Centre (BRC)
Sophie has been Director of Patient Involvement at Oxford BRC since 2012 and is also a Director of SPZ Associates specialising in medicine and social care communications and strategy. She has been involved in the JLA since it began in 2004 and is passionate about the importance of this way of setting research priorities.
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Chief Executive MQ
Cynthia represents MQ: transforming mental health, a charity working to promote research toward better treatments for mental health problems and is a big fan of using JLA methodology to inform research. MQ supports the Depression: Asking the Right Questions PSP survey now in progress and works to coordinate with the bipolar project.
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The Partnership and the priority setting process is supported and guided by:
The James Lind Alliance, as Chair of the PSP
David is a James Lind Alliance (JLA) Adviser working with bipolar disorder and Mid- to Moderate Hearing Loss Priority Setting Partnerships. He is an experienced Facilitator and Coach and Project Manager. He has a background in operations and HR in the NHS and public sector, and has run a business for the last 15 years. He loves the work he is involved in.
Oxford BRC James Lind Alliance Project Manager
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To view this document please click on the link below:
- Bipolar Priority Setting Partnership Steering Group Meeting - Thursday 3 July 2014 (pdf, 538 KB)
- Bipolar Disorder Priority Setting Partnership Steering Group Meeting - Wednesday 10 September 2014 (pdf, 286 KB)
- Bipolar Disorder Priority Setting Partnership Steering Group Meeting - Monday 17 November 2014 (pdf, 267 KB)
- Bipolar Disorder Priority Setting Partnership Steering Group Meeting - Thursday 22 January 2015 (pdf, 296 KB)
- Bipolar Disorder Priority Setting Partnership Steering Group Meeting - Monday 23 March 2015 (pdf, 275 KB)
- Bipolar Disorder Priority Setting Partnership Steering Group Meeting – Wednesday 17 June 2015 (pdf, 267)
- Bipolar Disorder Priority Setting Partnership Steering Group Meeting – Monday 12 October 2015 (pdf, 286)
- Bipolar Disorder Priority Setting Partnership Steering Group Meeting – Monday 14 December 2015 (pdf, 267)
- Bipolar Disorder Priority Setting Partnership Steering Group Meeting – Monday 1 February 2016 (pdf, 285)
- Bipolar Disorder Priority Setting Partnership Steering Group Meeting – Tuesday 26 April 20 2016 (pdf, 276)
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