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Oxford University Hospitals NHS Foundation Trust
NF2

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Support

NF2 can have a physical, emotional and social impact on your wellbeing; being told you have a genetic condition can especially affect how you feel.

Physical and emotional changes in your health can lead to difficulties in personal relationships; these difficulties are understandable and quite normal.

Please do not be afraid to discuss emotional, physical or social problems with the Nf2 staff. They will be familiar with the problems you encounter, and will be supportive.

The NF2 service offers ongoing support to you throughout the year, not just when you are seen in clinic. If you feel any of these services may be useful to you, contact your NF2 nurse to discuss.

What we offer

  • Genetic counselling
    • Helps you to understand the genetic aspects of NF2
    • Suggests different ways to share information with family members
    • Provides you with information about options for having a family
  • Hearing therapy
    • Advice on communication
      • Lip-reading and sign language classes
      • Hearing aids
      • Communication aids: telephone, pager etc.
    • Adjusting to hearing loss
    • Hearing symptoms
      • Tinnitus
    • Speech difficulties

Links

Neurofibromatosis Type 2 (NF2) - www.nhs.uk
General information about the condition NF2 on NHS Choices.

Can You Hear Us? - https://canyouhearus.co.uk
Dedicated to the needs of people with NF2.

The Neuro Foundation - www.nfauk.org
Improving the lives of those affected by neurofibromatosis.

Sight loss

RNIP Supporting People with Sight Loss - www.rnib.org.uk
Leading UK charity for people with vision loss.

Hearing loss

Action on Hearing Loss - www.actiononhearingloss.org.uk
Experts in providing support for people with hearing loss and tinnitus.

British Deaf Association - www.bda.org.uk
Day-to-day care, communication services and training, and also practical advice to help people protect their hearing.

British Tinnitus Association - www.tinnitus.org.uk
Advice, guidance and information about tinnitus.

Hearing Link - www.hearinglink.org/useful-orgs-uk
Leading UK charity for people with hearing loss, their families and friends.

Independent living / jobs / benefits

Access to Work - www.gov.uk/access-to-work/overview
Grants for practical employment support if you have a disability, health or mental health condition.

Benefits Service for NF2 Patients (pdf, 284 KB)

Citizens Advice - www.citizensadvice.org.uk

Turn2Us - www.turn2us.org.uk
National charity helping people in financial hardship to gain access to welfare benefits, grants and support.